MPs and peers have accused the NHS of failing people with muscular dystrophy after an inquiry uncovered a postcode lottery in life expectancy and access to provision, and uncertain funding for ...
Services for people with muscular dystrophy are so poor they "compromise patient survival" according to MPs. Sulaiman Khan is 24 years old, lives in Essex and loves anything with John Cleese in it. He ...
Roche announced that the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) issued a negative opinion on the conditional marketing authorisation (CMA) for ...
When Elie and Nancy Eid founded Save Our Sons Duchenne Foundation in 2008 after their first-born son Emilio was diagnosed with Duchenne muscular dystrophy, they could never have imagined how ...
The family of a boy with a severe degenerative muscle disease has urged their local hospital to prescribe a drug that could help slow down the progress of the condition. Six-year-old Jack was ...